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Volunteer Digital Marketing Officer



Posted over 30 days ago...

We are a small national charity supporting children and adults with a rare genetic disease: can you run digital marketing for us?


icon Salary


icon Location

Greenhithe, DA9 9AA

icon Expires

Expires at anytime

What will you be doing?

We are advertising for a part time role to run our digital marketing. The charity was set up in 2019 to provide advocacy, support and information for individuals across the UK who have X-linked hypophosphataemia (XLH). XLH and related disorders are rare and so communications requires a tailored approach, working through our community and the health system to improve access to better care and treatments. We have a recently redesigned our Wordpress website, a lively Facebook community and publish regular newsletters to keep the community informed.  We are looking for an individual with an interest in supporting the Charity, who

Has the ability to work as a team member and contribute flexibly Has strong digital communication and design skills Has a can-do attitude and a desire to make connections Is motivated to contribute to better health outcomes for people from all walks of life

The ideal candidate will be able to dedicate around 5 hours a week to ensure our website, blogs and social media remain relevant and timely. You will work closely with the Chair, who holds overall responsibility for Marketing and Communications. #LI-Remote

What are we looking for?

Digital communication skills, with experience of using

Wordpress Mailchimp Canva YouTube Multiple social media platforms

Strong copywriting skills and some design skills The curiosity and confidence to engage with our community

What difference will you make?

We hope that you will feel part of a small, friendly team and that you will see the impact you have helping us to thrive as a strong patient-led charity.


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