Volunteer Trustee

What will you be doing?

Would you like to make a real difference to the lives of individuals living with devastating and incurable conditions? Alex TLC is a trusted and experienced organisation offering support and information for all those affected by a genetic leukodystrophy. These are a group of often terminal, rare neurodegenerative conditions, affecting people of all ages and backgrounds, most notably children. Established in 2004, we are recognised by the NHS and global stakeholders as the "go to" organisation for those affected by these devastating conditions in the UK. Like many other small charities, we have grown organically from an informal support group to a thriving organisation supporting over a thousand individuals affected by leukodystrophy worldwide.  We are looking for experienced candidates to help develop and improve our existing beneficiary services as well as create and optimise future opportunities for growth. It is an exciting time to join Alex TLC and we are delighted to be able to offer this opening to join our Board and complement current trustees. Alex TLC currently employs 23 staff (three of whom are directly affected by leukodystrophy) and runs a charity shop business comprising five shops to support core costs. We are looking for new trustees with experience in one or more of these areas: legal, PR, marketing, communications, fundraising, campaigning, political activity, IT, public health/care services, management, partnership, not for profit Please read the role description for more information. 

What are we looking for?

We are looking for new trustees with experience in one or more of these areas: legal, PR, marketing, communications, fundraising, campaigning, political activity, IT, public health/care services, management, partnership, not for profit

What difference will you make?

This is a vital role, helping ensure we can continue our support for anyone affected by leukodystrophy. As a trustee, you will have a real opportunity to offer your unique skill set to help the strategic progression of the charity.