Volunteer Secretary

What will you be doing?

RACC - UK is a registered patient charity, staffed by volunteers, providing help to patients and families with rare Autoinflammatory conditions of all ages and backgrounds. The Secretary would participate online in monthly meetings including AGM where the Secretary would take the Minutes and circulate to the Board of Trustees, and occasionally project management meetings or recruitment. The meetings will be held virtually so you are able to work from home. Joining RACC – UK as a volunteer trustee provides unique opportunities for those who wish to undertake activities which will benefit the community, and which will enhance a personal sense of achievement. A Secretary volunteer is required to ensure that Board meetings (once a month) and other meetings are properly administered, to work with the Treasurer to ensure that the list of Trustees is up-to-date and accurate for the Annual Report that goes to the Charity Commissioners, and to ensure that policies are regularly reviewed. The Secretary volunteer will be organised and methodical, able to keep accurate records, have knowledge of RACC – UK’s Constitution and Charity Commissioner's requirements for a small charity, and be able to give clear and authoritative advice on procedural matters. Time commitment will be assisting monthly Board meetings. These can be held any time the majority of the board are available. You may be required to take Minutes for project meetings occasionally, amounting to an average of 2-3 hours admin/secretarial work per week.

What are we looking for?

The Secretary would participate online in monthly meetings including AGM where the Secretary would take the Minutes and circulate to the Board of Trustees, and occasionally project management meetings or recruitment. The meetings will be held virtually so you are able to work from home. Joining RACC – UK as a volunteer trustee provides unique opportunities for those who wish to undertake activities which will benefit the community, and which will enhance a personal sense of achievement. A Secretary volunteer is required to ensure that Board meetings (once a month) and other meetings are properly administered, to work with the Treasurer to ensure that the list of Trustees is up-to-date and accurate for the Annual Report that goes to the Charity Commissioners, and to ensure that policies are regularly reviewed. The Secretary volunteer will be organised and methodical, able to keep accurate records, have knowledge of RACC – UK’s Constitution and Charity Commissioner's requirements for a small charity, and be able to give clear and authoritative advice on procedural matters. Time commitment will be assisting monthly Board meetings. These can be held any time the majority of the board are available. You may be required to take Minutes for project meetings occasionally, amounting to an average of 2-3 hours admin/secretarial work per week for approximately 2 - 3 years. What are we looking for?

The volunteer secretary will live in the UK and be able to work virtually from home. A good command of spoken and written English is vital. Experience of taking Minutes online plus arranging and recording meetings. Knowledge of basic Company and Charity Law will be preferable. Experience of working within a team of volunteers/self-help group would be a bonus. An enthusiasm for supporting and advancing the role of a well-established, registered charity. Needs a basic IT knowledge - sending emails, keeping records, formulating documents, taking Minutes of meetings. Experience in Human Resources is desirable.

What difference will you make?

Over the last 5 years, RACC - UK has helped around 100 families with Autoinflammatory conditions. Our activities are range from virtual 1:1 support session, liaising with medical professionals and liaising with Schools. Our secretary needs to "keep on top" of what is going on with records, Minutes, policies etc. We owe it to our beneficiaries, the Charities Commission, and supporters to "keep our house in order". A good volunteer Secretary will enable RACC - UK to maintain accurate records of meetings and developments to shape our work and strategic direction, as well as help us achieve our purpose advocating and supporting patients and families with Autoinflammatory conditions across the UK.  Files will be kept electronically, available to the Executive Committee. The secretary will work closely with the chairperson on a weekly basis. The secretary will observe and follow closely our activities with our beneficiaries and stakeholders.