Volunteer Communications and Social Media Trustee

What will you be doing?

The CSF Leak Association is seeking a passionate and experienced Communication and Social Media Trustee to join our board and lead our digital engagement strategy. As we strive to raise awareness of cerebrospinal fluid leaks and support those affected, we need a dynamic individual to elevate our online presence and engage with our community effectively. Current Challenges and Goals:

Expanding our reach and impact across multiple social media platforms Maintaining a consistent and professional brand identity Ensuring responsible communication as a medical condition charity Coordinating volunteers to support our social media efforts

Role Responsibilities:

Develop and implement a comprehensive social media strategy aligned with our mission and goals Oversee and coordinate our presence on Facebook, Instagram, X (Twitter), LinkedIn, and YouTube Collaborate with our graphics specialist to create compelling visual content using Canva Lead and mentor a small team of volunteer social media helpers Ensure all communication adheres to our brand guidelines and maintains an appropriate tone for a medical charity Work closely with other board members to align social media efforts with overall organizational strategy Monitor social media trends and best practices, adapting our approach as needed

We're Looking For Someone Who Has:

Proven experience in developing and executing social media strategies, preferably in the non-profit or healthcare sector Strong understanding of various social media platforms and their unique characteristics Excellent written and verbal communication skills, with the ability to adapt tone for different audiences Experience in managing and mentoring volunteers Familiarity with content creation tools, particularly Canva Ability to balance creativity with the responsibility of representing a medical charity Passion for our cause and a commitment to raising awareness of cerebrospinal fluid leaks

This is an exciting opportunity to make a real difference in the lives of those affected by CSF leaks by enhancing our digital presence and community engagement. Join our dedicated board and help us reach more people with our important message.

What are we looking for?

Proven experience in developing and executing social media strategies, preferably in the non-profit or healthcare sector Strong understanding of multiple social media platforms (Facebook, Instagram, X, LinkedIn, YouTube) and content creation tools like Canva Excellent written and verbal communication skills, with the ability to maintain an appropriate tone for a medical charity Experience in managing and mentoring volunteers Passion for our cause and a commitment to responsible communication in the health sector​​​​​​​​​​​​​​​​

Interested candidates will be able to demonstrate:

A strong personal commitment to:-

(a) the ambition and values of the Association; and (b) promoting the interests of leak sufferers

A capacity to contribute actively to the strategic direction of the Association Confident and effective communication and influencing skills. A track record of effective, independent, decision making. An understanding and acceptance of the legal duties, responsibilities and lia Confirmation of a willingness to give the time commitment required for the role.

Experience of operating within a board or committee structure in a charitable, public sector or commercial organisation would be beneficial but not essential. We will provide support and training to help you transfer your knowledge, skills and experience to the role.

What difference will you make?

We have set ambitious objectives and we are committed to delivering on those objectives. Our ability to do so is dependent on our ability to make the most of the skills, energy and commitment of our volunteers. All of our Current Trustees and many of our volunteers suffer with the debilitating symptoms of a CSF Leak, which can have a very significant impact on our delivery. Whilst there have been huge benefits during our early days in involving people who have personal experience of a leak this can be limiting too in progressing at the pace we aspire to! Which is why we are now actively seeking to involve volunteers from outside our membership.