Volunteer Treasurer Trustee – Volunteer Board Role (CCHS UK)

What will you be doing?

As Treasurer Trustee, you will play a pivotal role in overseeing CCHS UK’s financial health and governance. You will work closely with the Chair, trustees, and our small team to:

Manage financial planning, budgeting, and cashflow Ensure compliance with charity accounting standards and reporting requirements Provide timely, clear financial advice to the board Support fundraising strategy with financial insight Help build financial systems and controls to support sustainable growth

Your contribution will directly impact our ability to deliver critical support, advocacy, and research for families affected by this ultra-rare and complex condition. You’ll be joining a passionate, experienced board committed to growing CCHS UK’s impact and reach. This is a rewarding trustee role for an experienced finance professional wanting to give back in a meaningful way, with flexible involvement and full support from the charity team.

What are we looking for?

We’re looking for an experienced and reliable individual with a background in finance, accountancy, or charity financial management who is ready to take on a governance-level role as Treasurer Trustee. You should have:

A recognised finance qualification (e.g. ACA, ACCA, CIMA) or equivalent experience Understanding of charity finance requirements, reporting standards, and best practice Ability to present financial information clearly to a non-financial audience Confidence advising on budgets, forecasts, and risk Ideally, experience with small charity finances or hands-on financial management (e.g. Xero, QuickBooks, or similar tools)

We’re also looking for someone who is:

Supportive and collaborative – willing to be a sounding board for the Chair and fellow trustees Detail-oriented, with good judgment Comfortable taking initiative and working independently, while contributing to board decisions

Time commitment is flexible – trustees typically attend 4–6 virtual meetings a year and contribute a few additional hours per month, with slightly more for the Treasurer during budgeting and reporting periods.

What difference will you make?

As Treasurer Trustee, you will play a crucial role in safeguarding and strengthening the financial future of CCHS UK. Your expertise will ensure we make the most of every donation, grant, and fundraising effort — allowing us to provide vital support for families affected by this rare and life-altering condition. Your oversight will enable us to grow with confidence, invest in impactful research and advocacy, and plan for the future with clarity and transparency. You’ll help ensure we remain a trusted and accountable charity — giving families the reassurance that their voices are heard and their needs are met. With your help, we can move from surviving to thriving — delivering high-quality support, raising awareness, and advancing global research collaboration for our small but determined community.